Published Paper Details:

The emotional bond between parents and their children is fundamental to family life. The arrival of a healthy, joyful infant into a family is a cherished moment, filled with hope for a typical, thriving child. However, when parents discover their child has a disability, it can be a devastating shock. Autism Spectrum Disorder (ASD) is a neurodevelopmental condition marked by social communication deficits and repetitive behaviours. Caregiving for individuals with ASD often involves substantial physical and emotional demands, with caregivers providing lifelong support. This extended caregiving has wide-ranging consequences for caregivers, including physical health issues, social isolation, financial strain, and psychological distress. Mothers, in particular, bear the brunt of these demands, experiencing higher stress levels and mental health challenges. The impact of caregiving extends to the entire family, affecting marital relationships, siblings, and even grandparents. This burden is referred to as 'caregiver burden' and encompasses various stressors. To alleviate this burden, healthcare providers should involve caregivers in care teams, promote self-compassion, provide education and support, and coordinate assistance. Initiatives like Ummeed Society Chandigarh, Mom's Belief by Nitin Bindlish, and the Sahyogi Scheme aim to support caregivers and create a more inclusive environment for individuals with special needs. Recognizing and addressing caregiver burden is crucial for enhancing the well-being of both caregivers and care recipients.