ISSN2320-2882
Impact Factor9.17
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Paper Title
Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study
Authors
Kartik Srivastava , Deepika Rajawat
Keywords
Haemophilia, parental support, caregivers, educational facilitators, parental awareness
Abstract
Haemophilia is an X-linked recessive genetic disorder that significantly impacts the sufferer physically, physiologically, emotionally, socially, mentally, financially and psychologically. This blood borne disease becomes more challenging specifically for learners in higher education and with this condition. The learners have to go through numerous academic hurdles raised by frequent bleeding episodes and associated gaps in their academic journey. Moreover, at such a crucial stage , concern for future aspirations, personal goals, physical constraints , financial loads, and social exclusion lead to psychological distress and emotional breakdowns. In coping up with these situations, the support systems of the haemophilic learners which includes their parents, teachers, siblings, peers etc play significant roles, not only by providing care and compassion but as social and financial support to the haemophilic learners. The present study explores the role of parents as a primary support system for haemophilic learners. Using a qualitative approach, data were collected through semi-structured interviews from parents of haemophilic learners. An inducto-deductive thematic analysis was employed to identify both pre-constructed and emergent themes. The findings revealed that parents play multifaceted roles including those of caregivers, supporters in emotional breakdowns, educational facilitators, and social advocates. Despite challenges such as financial burden and debts, lack of awareness, social stigma for the disease, psychological stress, parents actively devote themselves to ensuring continuity in education and overall well-being of their children. The study highlights the need for institutional and government support along with awareness programs to enhance parental capacity and inclusive education practices.
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IJCRT — journal style
"Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study", IJCRT - International Journal of Creative Research Thoughts (www.ijcrt.org), ISSN:2320-2882, Vol.14, Issue 5, page no.d743-d753, May 2026, Available :https://ijcrt.org/papers/IJCRT2605437.pdf
APA — 7th edition
Srivastava, K., & Rajawat, D. (2026). Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study. International Journal of Creative Research Thoughts, 14(5), d743-d753. https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437
MLA — 9th edition
Srivastava, Kartik, and Deepika Rajawat. "Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study." International Journal of Creative Research Thoughts, vol. 14, no. 5, 2026, pp. d743-d753, https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437.
Chicago — 17th, bibliography
Srivastava, Kartik, and Deepika Rajawat. "Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study." International Journal of Creative Research Thoughts 14, no. 5 (2026): d743-d753. https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437.
Harvard — author–date
Srivastava, K. and Rajawat, D. (2026) 'Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study', International Journal of Creative Research Thoughts, 14(5), pp. d743-d753. Available at: https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437
IEEE — numbered reference
K. Srivastava and D. Rajawat, "Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study," IJCRT, vol. 14, no. 5, pp. d743-d753, May. 2026.
Vancouver — biomedical
Srivastava K, Rajawat D. Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study. IJCRT. 2026 May;14(5):d743-d753.
AMA — 11th edition
Srivastava K, Rajawat D. Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study. IJCRT. 2026;14(5):d743-d753. Accessed at https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437
BibTeX — Zotero, Mendeley, LaTeX
@article{IJCRT2605437,
author = {Kartik Srivastava and Deepika Rajawat},
title = {Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study},
journal = {International Journal of Creative Research Thoughts},
volume = {14},
number = {5},
pages = {d743-d753},
year = {2026},
month = {May},
issn = {2320-2882},
url = {https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437}
}
RIS — EndNote, RefWorks
TY - JOUR
AU - Srivastava, Kartik
AU - Rajawat, Deepika
TI - Role of Parents as a Support System for Haemophilic Learners: A Qualitative Study
T2 - International Journal of Creative Research Thoughts
JA - IJCRT
VL - 14
IS - 5
PY - 2026
SN - 2320-2882
UR - https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437
SP - d743-d753
ER -
Issue
Volume 14 Issue 5,
May-2026
Pages : d743-d753
Article Information
- Pages
- d743-d753
- Published
- May 2026
- Registration ID
- IJCRT_308101
- Published Paper ID
- IJCRT2605437
- Research Area
- Humanities All
- Author Type
- Indian Author
- Location
- India
- Peer Review
- Request Peer Review Report
- Licence
- CC BY 4.0 · Open Access
- ISSN & Impact Factor
- 2320-2882 · IF 9.17
- Downloads
- 128
- Permanent Link
- https://ijcrt.org/viewpaperforall.php?paper=IJCRT2605437
- Published Paper PDF
- https://ijcrt.org/papers/IJCRT2605437.pdf
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The authors would like to thank the reviewers and the editorial board of International Journal of Creative Research Thoughts for their careful reading and constructive comments, and all colleagues who supported the preparation of this manuscript.
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